Life with pulmonary fibrosis

This website will support you to learn more about your condition and connect you with resources to help you and your loved ones

Looking out for signs and symptoms of pulmonary fibrosis

Do you experience shortness in breath, a cough that doesn’t get better or finger and toe swelling?

Explore pulmonary fibrosis symptoms

Uncover how pulmonary ﬁbrosis symptoms develop

Understand how pulmonary fibrosis can alter the normal function of your lungs:

Video length: 2.00 mins

Looking for answers but don't know where to start?

Answering the four quick questions below will help guide you to the information that is most appropriate and useful for you. Move the slider to the position that represents your answer best. When you have answered the four questions, your personal content recommendations will appear directly under the questionnaire.

On a scale of 1 – 10 tell us how much do you agree with the following statements:

Q1. I usually make a list of questions to ask my doctor or nurse at my next appointment

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Q2. l usually ask my doctor lots of questions at my appointment

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Q3. I find that having too much information about my health condition is overwhelming

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Q4. I prefer not to know everything about my condition. I trust my doctor or nurse to tell me what I need to know

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Featured topics

What is pulmonary fibrosis?

Pulmonary fibrosis means scarring in the lungs. Learn more about what pulmonary fibrosis is about how it affects the body

Pulmonary fibrosis pocket doktor

Understand more about pulmonary fibrosis

How to monitor how you feel over time

Download our symptom tracker to monitor how your child feels over time

Managing your cough

Although a persistent cough is a common symptom in pulmonary fibrosis, it can be managed

What is pulmonary fibrosis?

Pulmonary fibrosis means scarring in the lungs. Learn more about what pulmonary fibrosis is about how it affects the body

Conditions with pulmonary fibrosis

Pulmonary fibrosis can take many years to be detected and multiple tests can be required to rule out other conditions

Symptoms of pulmonary fibrosis

Pulmonary fibrosis can cause many symptoms, such as breathlessness or a cough. Your treatment team can help manage these symptoms

Managing your cough

Although a persistent cough is a common symptom in pulmonary fibrosis, it can be managed

Who does pulmonary fibrosis affect?

There are many conditions related to pulmonary fibrosis, including rheumatoid arthritis (RA). You can use the resources on this website to help manage symptoms so you can live life to the fullest.

Conditions with pulmonary fibrosis

Your emotional wellbeing is important

Living with pulmonary ﬁbrosis can affect you emotionally as well as physically. Discover information on support groups, exercise, therapy and mindfulness.

Mental wellbeing

Questions to ask your doctor

Preparing for appointments can help you to feel more actively involved in your care and give you some peace of mind. Create a list of questions to ask your doctor at your next appointment, so you can feel more conﬁdent with pulmonary ﬁbrosis treatment.

Caring for yourself

Everyone's story is different

Howard explains how his love for pulmonary rehabilitation and exercise transformed how he felt about his diagnosis. Find out how he stays motivated to live well with pulmonary ﬁbrosis.

Patient stories

KEEP TRACK OF YOUR WELLBEING

Write down any symptoms you experience each day and keep track of your mood. Share this information with your doctor at your next appointment so they can better understand your physical and emotional wellbeing.

Download the symptom tracker

Help us find the content that is right for you

Some days may be tougher than others. Regardless of how you're feeling we can point you in the direction of help. By telling us how you feel we can tailor our information and resources to your specific needs

Taking care of yourself

Even small lifestyle changes through nutrition, exercise, sleep and relaxation can improve your overall sense of wellbeing

Taking care of yourself

Caring for someone

Caring for someone with pulmonary fibrosis can be challenging but with the right support and self-care it can also be highly rewarding

Caring for someone

Practical advice

You don't have to stop living your life, with some adjustments you can set and achieve goals, travel and participate in fulfilling activities while living with pulmonary fibrosis

Practical advice

You may also be interested in

Doctor speaking with patient and smiling

What is pulmonary fibrosis?

Pulmonary fibrosis means scarring in the lungs. Learn more about what pulmonary fibrosis is about how it affects the body

Diagnosing lung conditions with pulmonary ﬁbrosis

Your doctor may use different tests to reach a pulmonary fibrosis diagnosis. Discover what this means for you.

Practical advice

You may need to make some adjustments, but you’ll still be able to set and achieve goals, travel and participate in fulfilling activities

“As far as I'm concerned, life doesn't end with this...We still live a good life. We dine out, we travel to hotels, we enjoy life, and we socialise generally. I'd say don't give up, don't give up”